Day + 48

Seth has asked me to give an update. This past week was one with lots of steps forward and back and forward and back and finally forward. This has been so trying and difficult for us. It was almost as if each day had another surprise. He developed an infection in his blood but that seems to be under control of an antibiotic. The swelling in his arm is slowly going down. His numbers are doing OK and his doctors are beginning to lower the doses of some of the medications and take him off IV food. The goal is go get him off all IV. This needs to happen so that he can go home. Tonight was his last IV food. This is “good” but now he has to deal with the hospital dietary shortcomings. He has been trying real food for the past few days and today they increased his variety of choices. He has been down this road before but his body was not ready for real food. Now it seems that he is able to tolerate it much better. His diet is still quite restricted and he often talks about the things he would like as soon as he gets the OK. This list gets longer each day. Finding out that he can order off the limited menu helps somewhat. He has been out of bed and PT has helped a great deal to get him moving. He is still very tired and weak but that will improve. His mind set is in positive gear. While he is not yet up to blogging himself, he does read the blog and loves hearing from all of you and so do I.

Love and thanks for all your support.

Mom

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12 Responses

  1. We are happy to hear of Seth’s progress. Glad he is able to eat more foods and is getting out of bed.
    As always we send our love and prayers. Enid sends her love and best wishes as well.

    Phoebe & Fred

  2. Baby steps that’s the way to do it! Better slow and staedy than too fast and crashing and burning! So very excited to hear the forward progress is winning out over the backward.

    Before you know it we’ll both be home. All the best Daddy and Grandma!

  3. Hi Seth and Karen
    This sounds very hopeful. I am looking forward to the day Seth can blog us and give us the good news that he ate his favorite food and is checking out of that place.
    In the meantime, thanks Karen for these much anticipated updates.
    love, hope and courage
    gail

  4. Dearest Karen

    Reading your update on this beautiful fall morning was a great way to start a new day. May each day bring Seth closer to having the strength to go home and “smell the roses” up close and personal!

    As always, our love, prayers and thoughts are with all of you.

    XXXXXX
    Shari & Benet

  5. Hi Seth and Karen –

    I’m glad to hear there’s progress, slow and frustrating as it must be. I have to imagine that it’s a good sign that Seth has enough appetite and energy to yearn for good food. I check in here every day, and it’s always good to get an update.

  6. Thanks so much for the up-date. Glad there is forward progress, even if it’s so slow. Sending good wishes, ronnie

  7. Dear Seth & Karen

    Everyday brings you closer to home and the smell of something good cooking in the kitchen. Your faith has made you through all of this and will continue to walk through this even if it is slowly at first. I miss your blogs.

    Keep smiling and positive. Your body will respond.

    ALL OUR LOVE, Elisa, Rachel & Megan

  8. Seth, Thinking of you a lot mate. Sorry to have been silent so long. I read your blog every day so you are always in my thoughts.

    Adam

  9. Seth, I have learned so much about dealing with adversity from you. Those evil PT sessions will become easier as time passes – count on it!

    Karen, you are just amazing – I admire your optimism, advocacy and blogability.

    I love u both.

    Here’s to fewer steps backward and positive surprises in the coming days!

    uncle lenny

  10. Dearest Cousins…your strength and courage and stamina never cease to amaze and uplift me…sending you loads of love and hugs and wishes for more forward steps and good food!!!
    xoxoxox
    marla

  11. KAREN DEAR

    YOU WRITE SO WELL THAT I CAN VISUALIZE SETH’S ACTIVITIES VIVIDLY
    HE IS VERY DETERMINED AND YOU BOTH SHOW SO MUCH “SPUNK” THAT ONE CAN ONLY ADMIRE YOU BOTH
    YOU KNOW YOU AND SETH ARE IN MY THOUGHTS AND PRAYERS
    EACH DAY BRINGS SETH CLOSER TO HOME
    MUCH LOVE
    BARBARA

  12. Wow, just great to see you are back on the blog. Keep growing stronger.

    Love,
    Phoebe & Fred

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