Day + 39

It feels so good to be able to write this entry with a positive feeling of encouragement.  Seth was able to get out of bed and walk down the hall today with a bit of assistance from physical therapy.  It was exhausting both physically and emotionally but his determination to get out of the hospital is the impetus that is getting him moving.

They did a follow up ultra sound regarding the swelling and clot and the preliminary remarks were good. We need to hear the doctors final report on that.

The GVHD is still a significant problem and will be so for a while.  It does appear to getting better ever so slowly.  The doctors are now talking about getting some of the Seth’s meds reduced and transitioned from IV to taking orally.  One of the other next steps is to get Seth back to eating real food. Knowing his dislike for the hospital “food” I guess that means I will be doing a bit of cooking.  No Problem 🙂

For me one of the strongest signs of his improvement was asking for his laptop and talking about the new operating system for the MAC.

When I left, he was truly tired but it was a tired of accomplishment and hard work, a good tired.

Thanks for continuing to give your love and support.

Mom

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18 Responses

  1. Your encouraging report greeted us this morning as we followed our daily routine of opening Seth’s blog before we read any of our emails.
    It’s a beautiful day here in NYC…made even more pleasant by what we just readabout Seth’s progress.
    May every day be this nice for Seth and all of your from now on!
    Much love,
    Shari & Benet

  2. Dear Seth and Karen,
    How wonderful to read the blog this morning. It is part of my routine….wash my face.. brush my teeth…read your blog….and today we are all smiling. Hope the day includes more remarkable strength and progress.
    Hugs, prayers, happy thoughts and love,
    Bernice

  3. Hi
    Sounds great. This news is certainly a mood elevator for all. I know the determination will win out and even if the progress continues to be slower than everyone is hoping before, one thing we have is time. Keep it going!!
    love, hope and courage
    gail

  4. Always good to hear from you, and glad to hear things are a bit more encouraging. Amazing what the doctors can “manage” these days with constant surveillance, but most of the credit goes to Seth and you for moving along. I can only think: what an ordeal!

  5. So very happy to read of the progress! I hope and pray that it continues at a steady pace. Please keep us posted, as you can.

  6. Great News Seth. Every small step is a victory. Keep up the hard work.

    With love and prayers – the Gleasons

  7. definitely very encouraging news… keep hanging in there mom and shining for Seth – send my love and regards

  8. It’s wonderful to hear the good news.
    We are always thinking of Seth.
    Strength and love,

    Phoebe & Fred

  9. THIS WAS WELCOME NEWS
    SO GLAD SETH IS MOVING ABOUT AND WANTS HIS LAP TOP AND YES KAREN
    YOU WILL BE COOKING
    COULD YOU MAKE A LITTLE EXTRA FOR FRIENDS IN QUEENS THAT GOOD USE A PICK ME UP?
    I THINK I KNOW THE ANSWER
    BABS

  10. THE FRIENDS IN QUEENS COULD USE A PICK ME UP!!!!!!!!!
    CHICKEN SOUP AND MATZOH BALLS WOULD BE APPRECIATED

    LOVE TO YOU BOTH

  11. Glad to hear about today’s developments!! Next thing you know, Seth will want latkes and applesauce! (Actually, I want latkes and applesauce, but I guess that is just wishful thinking).

    Dave and I are glad to hear that physical therapy is moving along. Seth, ya gotta walk if you want to “cherchez” as they say!

    All the best,

    Bonnie

  12. Yay Seth! Sending lots of love, strength and a Leopard upgrade.

  13. So great to hear the news about Seth – I, like everyone else, check in first thing and last thing, to see how you’re both doing. This is wonderful news…and remember Trader Joe’s, all those little meals. Call it tapas, and you’ll be the chic-est people on the floor! 🙂

    Tell Seth that Leopard is no great shakes…ehhh. Cute, and sexy, but I’d wait.

    love to you both,
    a

  14. BRAVO, Seth. Way to go! It’s obvious that your fortitude comes from your amazing mother. You two are quite the team – player and cheerleader! So here’s one more holler of GO TEAM GO!

    The anticipation of eating “Mom’s Home Cookin” must be overwhelming – an enticing goal to strive for w/tasty rewards. Thanksgiving is fast approaching – and what a great day that will be on so many levels.

    Marci

  15. Seth spoke with your Mom a few days back. So glad to hear that the swings and roundabouts always end up going in the right direction even if there is a little 2 steps forward one step back. Sending as always love and strength.

  16. So glad to see the positive news. Lucky Seth, getting some of Mom’s good cooking soon. It’s amazing how little things we used to take for granted become important and appreciated. Hang in there. Ronnie

  17. My dear Seth glad you got off the bed and started to walk. I understand you asked for your laptop. I hope you can start to read some of your email, because your Aunt has been sending some to you to make you laugh[in fact some I laughed out loud.
    Also as soon as you can please change your Hebrew name and enclose the new one. Your oldest but best cheerleader Love Aunt Barbara

  18. Like a lizard drinkin’, Ted and l are flat out with enthusiasm, (bad dance routines) and joy celebratin’ the news you are treadin’ the boards once more!

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