Team name selected …




LTN_C.JPG

Originally uploaded by sdpalmer

We will be walking as “Seth’s Solemates” — many thanks to my cousins Shari and Benet for the suggestion … and for everyone’s suggestions. Loved them all!

We are in the process of registering for the walks in NYC and in Philadelphia and will send further information next week.

Thanks to everyone for your participation and we look forward to walking with you in September (in Philadelphia) and in October (in NYC).

Strength and love,
Seth

Contest: Name the team! [Contest closed]

UPDATE: The contest is now closed and we are deciding on a name. Look for a new post shortly announcing the winning team name.

We are forming a team for the Leukemia and Lymphoma Society’s annual walk to raise awareness and money. Soon, we’ll be solicitng your attendence and support, but right now, we’re trying to name our team. So please respond to this posting with a comment below with your recommendation on a team name for us. The team captain – my mom – has suggested the format of “Seth’s ______” — just fill in the blank. Contest closes Wednesday – so please get your suggestions in by then.

Headlines on the walk: Thursday, October 4th, 2007 – Brooklyn Bridge. More details will follow as we assemble the team. We really appreciate your support!

Since I’ll still be in the hospital recovering from the transplant, our team’s co-captains will be (caught here practicing for the walk):

Voodoo and mom

Strength and Love,
Seth

PS: Please forward this to as many people as possible so we can get wide and varied input! Thanks!

Physical therapy is done!

Yesterday was my last day with the physical therapist. I achieved a very high score on all of the tests for balance and endurance. It was a substantial improvement over last week and I think it’s due to my stubborn independence and just wanting to try to resume a somewhat normal life. Basically, the results of yesterday’s tests result in me not needing any assistance in walking, i.e., a cane or walker. However, when walking outstide on the uneven sidewalks and other outdoor pavements, I prefer to have the cane with me to help my balance, but there are stretches where I can walk unassisted. Very exciting … and now on to new challenges!

Strength and love,
Seth

Transplant dates set

After months of set backs and other various delays, we’ve finally set the dates for the bone marrow transplant. I return to the hospital on 14 September and begin two days of chemotherapy after that, then three days of radiation. On 20 September, I receive the transplant cells, and the count-down begins: 20 September will be Day 0. We expect the first 30 days I’ll be in hospital, and then another 70 at home. Then day 100 – that’s the magic day when I can start to resume a some-what normal life without isolation precautions. Day 100 happens to work out to be December 30th — so I’m looking forward to celebrating quite a bit come New Year’s.

Post-Brithday Birthday Celebration

Neil, Deb, David and Me

Originally uploaded by sdpalmer.

Because I spent my birthday in surgery an in recovery, we rescheduled a post-birthday birthday celebration yesterday. Champagne, and some of my favorite delicacies from Russ and Daughters: caviar cream cheese, whitefish salad, smoked salmon. Mom made tuna and egg salad, and we had crudité and a new find from Trader Joe’s: Italian Blood Orange soda. And while we were stocked with proseco, we downed he champagne Deb and Neil brought. Thank you, everyone! Full picture set at Flickr.

102%

I know it’s been a while since I wrote on the blog last – and there have been plenty of pleas, phone calls, and emails imploring me to write. It’s been a week and a couple of days since I came home and there have been lots of adjustment issues, home appointments with nurses and therapists – but more on that later. Here’s the latest update:

Today I had a pulmonary test in advance of the bone marrow transplant – it’s a standard set of tests to see if I’m still breathing 🙂 … seriously, it’s a suite of tests designed to measure my lung capacity, my intake and output flow volumes, etc.. Easy tests mostly – only one of them required me to practically hyperventilate which made me dizzy, but otherwise, it was easy and painless. I learned an interesting fact today: my lung capacity is 5.08 liters which is 102% of anticipated capacity of a person my age, height and weight. This is interesting since I smoked for about 20 years and only just recently stopped when I was first admitted to the hospital six months ago, back in February.

And on the topic of excess … yesterday morning, the fire alarm went off at 7am. Mom and I piled out of the apartment in a quasi state of waking. A neighbor was leaving his apartment with his kids ahead of us. The kids looked so dazed. Well … walking with a cane now, I can tell you that living on the eighth floor of a building where each floor has 18-foot high ceilings, walking downstairs is quite the hike. Just after the fifth floor, the neighbor who was ahead of us, came running back up from the ground floor to let us know that it was a false alarm.

As a NY’er, I am always surprised by the kindness of strangers to other strangers when outside of NYC. I don’t know entirely how to express my thanks to him but I’ll put a note under his door to say thanks at least. I don’t even know his name 😦

Well, with all of that excitement, I’d be remiss if I didn’t mention the nurse I’ve seen twice this week, the occupational therapist that came to visit, the physical therapist that came to torture me, the wound care nurse who helped to change my bandages and change my ostomy bag. Then tomorrow, I have the social worker, next week, another round with OT and PT, and a mugga scan for my heart (another set of tests in advance of the transplant).

On top of all that, I’ve been walking outside. It’s difficult walking on the concrete versus the soft floors I’ve become accustomed to indoors. But the other day, I got a whole 2.5 blocks! It’s quite a hike since my longest distance prior to that was just 500 feet. Two and half blocks – I’m thinking it’s closer to 1,000 feet or more, but my mom, who accompanied me on the journey, thinks it wasn’t quite that far. Well – isn’t it just natural that we would have different opinions? 🙂

I promise to write more regularly. In the mean time, I’m going to sign off for now.

Strength and love to all!
Seth

Coming to you you live … from HOME!

After 62 days in hospital, I was discharged yesterday. YEAH!

When I got home, it felt weird – like … it’s not another antiseptic hospital room; it’s my home. And it was pretty much exactly as I remembered it. A new addition are the banister rails on the steps for my loft (installed at different angles which is pretty funny, and yet, sad at the same time).

Good, home-cooking (or at least preparation) last night: bagels with smoked salmon … YUMMMMMMM! Forspeisse was crackers with various dips. And dessert is still pending, but my brother and sister-in-law gave me an ice cream maker for my birthday and we prepped that last night so we can make ice cream today. 🙂

I need a few days to regain some strength and adjust to being home, but I will be welcoming visitors soon, as well as spend some more time on the phone catching up with everyone.

Many thanks, again, for everyone’s support.

With strength and love,
Seth