Here we are…at day 65 post transplant. Still struggling to get the he…. out of the hospital. Remember how naive we were, thinking oh yes, we will be home in 30 days. That is the perfect world. We are not there. It must be on a planet in another solar system. If I sound frustrated, I am. And if I feel this way, try to imagine how Seth is feeling. It amazes me, that inspite of all the setbacks, there are still things that still make him smile; a funny story, a good movie, and so it goes.
We did have Thanksgiving dinner together. Homemade turkey and stuffing and cranberry sauce. It was a time to realize how much we do have to be grateful for.
From a medical standpoint, they are still trying to get Seth off more of the IV medications. This is very tricky and challenging for all. They tried one of the medications that he must take, but his system was not ready for the oral form, so back on the IV he went. Even some of the medications that he has been on for a long time, sometimes become problematic and they need to be changed as his body does not do well with them any more. The GVHD becomes active as soon as there is a change that the body does not accept so it is a very slow process to make this transition.
Seth asks that you continue to share your comments on the blog. While he does not always have the energy to write, he does love to read what you say. It is a wonderful way for him to keep connected with all. Needless to say, it means so much to me as well.
Filed under: Cancer