Day + 65

Here we are…at day 65 post transplant.  Still struggling to get the he…. out of the hospital.  Remember how naive we were, thinking oh yes, we will be home in 30 days.  That is the perfect world.  We are not there.  It must be on a planet in another solar system.  If I sound frustrated, [...]

Day + 58

This has been quite a week It started off with some of Seth’s numbers going totally out of control and gave us quite a scare, requiring some tests to find out what was going on.   The good news is that these things have seemed to have been resolved and Seth is back on track. [...]

Twins :)

Ultrasound of my heart from yesterday.

Day 50

As I’ve been learning through most of this illness, whatever complication can be simply described is usually not quite as simple as it would seem. Same thing for side-effects. Come to think of it, describing these outcomes in only the most simplest of ways is common-place and probably easiest to do because the manifestations of [...]

Day + 48

Seth has asked me to give an update. This past week was one with lots of steps forward and back and forward and back and finally forward. This has been so trying and difficult for us. It was almost as if each day had another surprise. He developed an infection in [...]

Day + 42

Just to let you know that Seth made it out of bed, did a walk down the hall and back.  It was a huge effort but he did it.  He is now on the BRAT diet. (no nasty comments, please)  This is Bananas, Rice, Applesauce, Toast.  If his body continues to respond positively, he will [...]