It was an anxiety-ridden day, but all went well. Around 1pm all sorts of people were in the room – the defroster, the nurse practitioner administering the cells, my oncologist’s assistant, two nurses, my mom, my brother, his wife and tons of prayers and spirits of good will — in a tiny tiny room. (Oh … and myself)
All went very well except for a little weariness and discomfort in bed later, and some food issues. It was a long day but a good one.
I’m writing to you now from the beginning of day 1 and I feel fine but the journey ahead will test the binding of the new stem-cells to my body and see what happens from there.
I know my blood type will change – I’m formerly A-positive, my donor is B-positive – and I can’t wait to see what else changes. By far the biggest outwardly change is my name.
It is typical to consider day 0 your new birthday and as such, at events such as this, my rabbi even advised that I can add to my name. So I have decided to add “Yigal Chaim” – liberated/recaptured life – to my Jewish name and my rabbi will name me in services for Yom Kippur.
The whole religious aspect of this adventure still rings out sharply for me. “Hayom harat olam” – today the world is born we declare as part of the Yom Kippur liturgy. I can’t help but feel a whole new me is born too.
May we all be inscribed a happy and healthy new year – gamar chatimah tovah!
Strength and love,
Please remember to support us for the Light the Night Walk:
To make a donation, please visit:
To join the team and walk with us in NYC on October 4th (of in Philadelphia on September 29th) – my mom and Voodoo are team captain (I’ll be in the hospital in the middle of the transplant procedure), please visit my recent blog entry with directions to join: http://survivingleukemia.wordpress.com/2007/09/09/light-the-night-walk-nyc-philla/
(it’s not the greatest user experience – my apologies in advance)
Filed under: AML, Cancer, Leukemia, leukemia and lymphoma society, light the night, transplant | 12 Comments »